Thursday, December 16, 2010

feeling better...

Hi all,

Mom had a rough night but she is feeling better today. She's still a little puffy but definitely better than last night. She is going in for IV fluids tomorrow and then she will have more chemo next week, but not the carboplatin.

A special thanks to our family friend Ann Young for being with Nyshie yesterday!!!

Maggie

Wednesday, December 15, 2010

from Maggie...

Hi all,

Mom had a pretty rough day. Her red blood count and platelets were back to normal so they deemed her healthy enough for round #5 of chemo. One of the chemo drugs, carboplatin, can cause allergic reactions after a period of time with no reaction. During round #4 she had a mild reaction, mostly itching and throat swelling, so they pushed it slower today through the IV. Unfortunately it didn't matter and she had a severe allergic reaction. She had red hives over most over her body and was unrecognizable. They put oxygen on her and pushed 3 IV steroids. They kept her at the hospital for awhile and there was some talk of keeping her overnight but I guess they decided she was okay. So, no more carboplatin for her. She is home tonight but feeling horrible, from steroids or chemo or both. She will have the second chemo drug next week and her doc will have to shift the game plan for round #6.

She's definitely not up for calls tonight, not sure about tomorrow??? I'll post tomorrow and let everyone know how she is doing.

Maggie

Tuesday, December 7, 2010

Fly Siblings in October

from Mom ...

A day to remember ...

Pearl Harbor day and also another day for me to remember. I was diagnosed on this date exactly 3 years ago with ovarian cancer. How much this has changed our lives.
Just a brief update tonight. I had labs last Friday morning, followed by transfusions of 2 units of red blood plus platelets. Thankfully, my good friend Lee Balick was here to keep me company, play cards and nap, as it took all day. Had labs rechecked yesterday and today went in expecting to do chemo, but alas, my blood levels were still too low, so it is postponed until next week. You would think I’d be ecstatic about having another week off, but prolonging this process is nothing to be excited about. It makes it impossible to plan ahead for anything. The good news is my CA125 has dropped from 10 to 6, which is the lowest it’s been in years. The chemo is definitely kicking ass!

Well, time to pull up my boot straps, stop feeling sorry for myself and start dancing. Tis the season, right?

Love you all,
Nyshie

Saturday, November 20, 2010

News from BGGN...

Whew! Glad I made it past the last one. The blood transfusions I had last Thursday took a while to kick in, but I have been feeling much better for the last few days. I had an interesting visit with the wizard on Wednesday for my fourth round of chemo. The first medicine was infused with no problem, but within about 10 minutes of starting the carboplatin I began to experience a fairly serious allergic reaction: throat itching and swelling, hands and feet itching. They stopped the infusion and gave me IV Benadryl and a steroid, which eventually calmed it down. Needless to say, I didn’t receive the remainder of the chemo. I think the IV was running too fast, as I’d had a similar reaction 3 years ago.

Anyway, I’m good to go now. Feeling pretty sassy today, but getting prepared for sinking down into that black hole again probably by morning.

By the way, sorry about the gloom and doom of my previous posting. I suppose there are good days and there are bad days and that was one of those days.

Love you all,
Nyshie

Thursday, November 11, 2010

from Mom...

You just never know ...

I thought this was going to be my “good week” for the month and it has definitely turned out not to be. The chemo last Thursday once again kicked my butt and I spent the next 5 days, a good part of the time, in bed and/or going down to the hospital to get extra IV fluids and electrolytes for dehydration. Started to feel better Tuesday, although still extremely weak and dizzy (more so than usual). Found out yesterday that my red blood count was low enough that I had to go in today for blood transfusions. That should definitely put me back in the pink, until Wednesday when I have my next chemo.

I keep telling myself how lucky I am to have such a great response to chemo and all of the other reasons I’m so "lucky." Some days it’s just harder than others.

Love you all,
Nyshie

Wednesday, October 27, 2010

from BGGN....

And, the good news just keeps on coming. First of all, I STILL have my hair! No idea if or when it will start coming out. As you remember, my CA125 was 92 prior to starting chemo. After one treatment, it came down to 44 and after my last treatment, it came down to 13! I have my third treatment tomorrow, so we fully expect this trend to continue. I asked my oncologist yesterday if it drops even lower, could I just skip the last 3 chemos, but no such luck, for a variety of reasons. (Faster reoccurrence time and shorter overall survival time)
There seems to be no consistent good day/bad day pattern after the chemo, so I’m just trying to make the best of the good days. Enjoying the beautiful fall weather, the grandchildren (the joy of my life) and friends and family.

Love you all,
Big Giant Grandma Nyshie