Wednesday, August 14, 2013

from Mom ...

What to say ...

I think Maggie pretty well summed things up in her previous posting.  I am recovering from the cardio thoracic surgery, although having more pain than I had anticipated.  The surgeon said it is equivalent to having ribs broken, so not to expect too rapid of a recovery. All of the biopsies he did from the heart and lung sacs, my diaphragm, etc. all came back positive for metastasis of ovarian disease. 

A quick thank you for all the cards/food/calls/flowers/emails ... too many to respond to individually.

The discussion with my oncologist was sobering. As Maggie said, he commented that we have been fighting the good fight, but now the cancer is winning.  He was not very encouraging about the chemo I’m starting tomorrow, but thinks it’s worth a try. I hate to be so morose but he thinks that if the chemo doesn't work to slow down the growth, we’re looking at months.  Hopefully, I’ll have another Christmas with the kids & grandkids. The ambiguity is the worst part.  Ben is planning on coming back to the Springs, probably within the month.  He’s looking at options for completing his Master’s program, which he would have completed this semester. As one more treatment option, we are exploring the use of cannabis/marijuana as a “treatment” for the cancer itself, not just to reduce the side effects of the chemo.  There is a lot of research going on in this area, just very limited and guarded here in the states. The next time you see me, I may be even more goofy and chatty (yes, it’s possible, Ellen).


The kids and Paul and I are trying to be open and discussing what all this means. Tough stuff for sure. Paul asked me where I want to go, what do I want to do in the next few months and honestly, there are children to love, grandchildren to hug and enormous basil waiting for me in my greenhouse ... it just doesn't get any better than that.

You will find as you look back upon your life that the moments when you have really lived are the moments when you have done things in the spirit of love.  -  Henry Drummond

Love you all,
Big Giant Grandma Nysh

fly fishing in Mammoth in July

today with baby Nyshie
fabulous tee from niece Leslie, "EFF CANCER"

Tuesday, August 13, 2013

BLOG WORKING!

Thank you so much to the fabulous Erin for figuring out what was "broken" with the blog.  Thank you, thank you!!!

I had the day wrong, Mom's doc appts were today.  Mom, Paul and I  met with the PA at her heart surgeon's office this a.m.  She had a chest x-ray first and everything was fine.  Lungs & heart look good.  She's still having a fair amount of pain, which unfortunately will last awhile.

Oncology appt was mid-day.  I'm giving the brief version tonight, Mom will expand on this tomorrow.  Sadly, Mom's CA125 is now 1622.  This, and all of the fluid complications, are factors of the late stage of the ovarian disease.  The doc put it simply that Mom was winning for a long time and now the cancer is.  She is going to try a different chemo on Thursday.  The treatment options are coming to an end.  

I'll let Mom fill in the rest ....

Love,
Maggie