She had a rough night, very nauseous and no improvement. The doc said it was NG tube time. For those not familiar; a tube is inserted into a nostril and 'thread' in to her stomach. Then a pump is turned on to help relieve pressure from her stomach and bowels. It started working immediately, so hopefully she'll have a more restful evening. The tube will stay in at least 24 hours, not comfortable and she really can't talk now.
Her doc will be in tomorrow morning. So, just depends on how things go between now and then. Side note, she has been running a low fever so they're rechecking her white count and running a liver panel as well.
I have been passing on all of your messages and well wishes.
Thank you for the love and support!
Maggie
Sunday, November 6, 2011
Saturday, November 5, 2011
The evil C .............
Nyshie is back in the hospital. I'll back up for those of you that are hearing this for the first time.
Thursday she woke with her horrendous gastric/reflex pain that she has periodically, ever since she began chemo. It is sometimes managed at home and sometimes she requires IV meds to "quiet the spasm." Nothing worked. Rod (brother-in-law) so kindly drove her to the ER and they gave her the usual run of IV pain meds, anti-spasmodic, anti-nauseas, etc. They did a scan or ultrasound and noted that she had a gallstone, and then sent her home. The pain continued throughout the evening and Friday morning she was in agony.
Friday afternoon Paul took her to the cancer center and they did a catscan. She was literally lying on the floor in unbearable pain, belly distended, so they admitted her Friday late afternoon. The catscan showed a small blockage in her bowel, believed to be air or adhesions/scar tissue from previous surgery and trauma she has suffered to that area. The scan also showed that she has a number of tumors. The one near her thoracic artery is back as well as the one in her pelvic cavity. She also has tumors adjacent to her bladder and liver. I believe there were a few more mentioned on the scan but can't recall any more details. Friday evening they tried to control her nausea and pain. She did not rest very much.
Saturday morning I headed up and she felt fairly awful. They increased her pain meds and Paul arrived just as the doc stopped in to do rounds. Her usual doc is not on call this weekend but will see her Monday. The on call doc was great. The plan is to see if the bowel obstruction will correct itself between now and Monday and also they adjusted her meds to try to make her more 'comfortable.'
They also repeated her CA125, tumor indicator blood test, which was in the 60s but has jumped to 157.
If the bowel obstruction has not cleared by Monday, when her regular doc who is an OBGyn/Oncologist returns, then they will talk surgery. First he will correct the bowel, second removal of tumors and third, possible removal of gallbladder with one lone gallstone.
Chemo will begin soon.
Her cell is off, she can't talk. She also has said she is not ready for visitors. I will let everyone know when that changes. Paul is also very emotional and overwhelmed so please try not to call. All three of his kids are here rallying around him.
If you have questions feel free to call or email me, manshutz@gmail.com. I'll update the blog a few times a day.
For now ... please send love.
Thank you,
Maggie
Thursday she woke with her horrendous gastric/reflex pain that she has periodically, ever since she began chemo. It is sometimes managed at home and sometimes she requires IV meds to "quiet the spasm." Nothing worked. Rod (brother-in-law) so kindly drove her to the ER and they gave her the usual run of IV pain meds, anti-spasmodic, anti-nauseas, etc. They did a scan or ultrasound and noted that she had a gallstone, and then sent her home. The pain continued throughout the evening and Friday morning she was in agony.
Friday afternoon Paul took her to the cancer center and they did a catscan. She was literally lying on the floor in unbearable pain, belly distended, so they admitted her Friday late afternoon. The catscan showed a small blockage in her bowel, believed to be air or adhesions/scar tissue from previous surgery and trauma she has suffered to that area. The scan also showed that she has a number of tumors. The one near her thoracic artery is back as well as the one in her pelvic cavity. She also has tumors adjacent to her bladder and liver. I believe there were a few more mentioned on the scan but can't recall any more details. Friday evening they tried to control her nausea and pain. She did not rest very much.
Saturday morning I headed up and she felt fairly awful. They increased her pain meds and Paul arrived just as the doc stopped in to do rounds. Her usual doc is not on call this weekend but will see her Monday. The on call doc was great. The plan is to see if the bowel obstruction will correct itself between now and Monday and also they adjusted her meds to try to make her more 'comfortable.'
They also repeated her CA125, tumor indicator blood test, which was in the 60s but has jumped to 157.
If the bowel obstruction has not cleared by Monday, when her regular doc who is an OBGyn/Oncologist returns, then they will talk surgery. First he will correct the bowel, second removal of tumors and third, possible removal of gallbladder with one lone gallstone.
Chemo will begin soon.
Her cell is off, she can't talk. She also has said she is not ready for visitors. I will let everyone know when that changes. Paul is also very emotional and overwhelmed so please try not to call. All three of his kids are here rallying around him.
If you have questions feel free to call or email me, manshutz@gmail.com. I'll update the blog a few times a day.
For now ... please send love.
Thank you,
Maggie
Monday, August 8, 2011
Saturday, August 6, 2011
Well .............
Second verse, same as the first ...
Just had my CA125 drawn last week and it has increased from 8 to 36. Below 35 is considered normal but the trend for me clearly indicates that the cancer cells are ramping up again. I have decided to try a regimen of oral Tamoxifen (hormone normally used for breast cancer), which has had some effect in slowing down ovarian tumor growth in some cases. I’m continuing with the acupuncture, Chinese herbs, milkshakes and exercise which certainly can’t hurt. Will have everything rechecked in two months, but we’re probably looking at another round of chemo later in the year.
What can I say? It’s the hand I’ve been dealt. Just focusing on our four beautiful granddaughters, loving and supportive family and friends, and enjoying this beautiful Colorado summer.
Love you all,
BG”S”GN (Big Giant “Sassy” Grandma Nyshie)
Ila, baby Nyshie & Vivian
Picture of wee baby Mae coming soon!
The girls working on Grandpa Paul's next surgery.
Just had my CA125 drawn last week and it has increased from 8 to 36. Below 35 is considered normal but the trend for me clearly indicates that the cancer cells are ramping up again. I have decided to try a regimen of oral Tamoxifen (hormone normally used for breast cancer), which has had some effect in slowing down ovarian tumor growth in some cases. I’m continuing with the acupuncture, Chinese herbs, milkshakes and exercise which certainly can’t hurt. Will have everything rechecked in two months, but we’re probably looking at another round of chemo later in the year.
What can I say? It’s the hand I’ve been dealt. Just focusing on our four beautiful granddaughters, loving and supportive family and friends, and enjoying this beautiful Colorado summer.
Love you all,
BG”S”GN (Big Giant “Sassy” Grandma Nyshie)
Ila, baby Nyshie & Vivian
Picture of wee baby Mae coming soon!
The girls working on Grandpa Paul's next surgery.
Tuesday, June 21, 2011
Mae Rose ...
Beth, Danny & big sister Ila welcomed their second daughter, our fourth granddaughter, born June 16th, 8 lb 14oz and 21 inches!!!
Love, Grandpa Paul & Grandma Nysh
Love, Grandpa Paul & Grandma Nysh
Ohhhhh ya!!!!
Paul bought this new "toy" for me today. 1991 XJS V12 British Racing Green Jaguar convertible. Always wanted one and we never know what's coming around the corner.
Life is good,
Big Giant Grandma Nysh
Life is good,
Big Giant Grandma Nysh
Tuesday, April 26, 2011
More good news!
I couldn’t stand it. I went in last Friday to have my port flushed (which I have to do every 6 weeks). I decided to go ahead and see what my CA125 was doing. Just got a call from the office and IT IS STILL 8!!! In three months it has gone from 12 to 8and remains at 8. This is very unusual for me. I’m still feeling pretty sassy (even though I just turned 60) and continuing with my acupuncture, Chinese herbs and daily milkshake. So far so good. For real this time, I probably won’t have it checked again for a couple of months.
That’s just the way I roll…
Big Giant Grandma Nysh
That’s just the way I roll…
Big Giant Grandma Nysh
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