Hi all,
Well, Vivian and I met Mom & Janet at the house this morning. We packed up a few valuables, irreplaceable photographs and a table that Dad (Al) built. Vivian was slightly confused about the reason we were there. She thought everything was up for grabs and kept saying, "I want that" and "I want this!" Silly girl.
The firefighters have their containment lines in place but said the weather, hot & dry, would test them. With the smoldering hot spots still so close it makes the most sense to take advantage of the lifted evacuation and move some more things for now.
Paul & Danny left this a.m. for Jackson, WY and Mom is on a plane headed there now. Beth is already there with her two girls and they'll spend the week with Eric, Jess & Jess's family. Hopefully, it will be relaxing for everyone after a very difficult week.
Mom's shoulder & neck benefited greatly from the acupuncture. So, she is either going to have another session while in Jackson or get a massage.
That's all for now.
Love,
Maggie
Saturday, June 30, 2012
Friday, June 29, 2012
YAY!
Spoke with Mom about an hour ago, she went to acupuncture this morning and it helped her neck & shoulder tremendously.
And, at 8pm tonight they lifted the mandatory evacuation on their neighborhood.
Never have I loved caller ID so much as when I saw her home land line pop up a half hour ago. WOW!
The fire is still burning, of course. It is 25% contained and there are still some areas on mandatory evacuation. But, the firefighters are beyond amazing and their massive efforts are starting to turn things.
Mom sounded so great!!
Love to all,
Maggie
And, at 8pm tonight they lifted the mandatory evacuation on their neighborhood.
Never have I loved caller ID so much as when I saw her home land line pop up a half hour ago. WOW!
The fire is still burning, of course. It is 25% contained and there are still some areas on mandatory evacuation. But, the firefighters are beyond amazing and their massive efforts are starting to turn things.
Mom sounded so great!!
Love to all,
Maggie
Thursday, June 28, 2012
First, thank you all for checking in this week!!!
Nysh had a very scary evacuation Tuesday late afternoon. She was home by herself, Paul was at work. The pre-evacuation order had been given and she was packing. At 4pm a news conference started and by 4:30 it was an emergency, chaotic evacuation. The fire exploded with 65 mph winds pushing it north/northeast, towards Mom & Paul's. She said she stepped out on the patio and saw violent flames erupting & moving very quickly. She grabbed the cat and got in her car. It was dark as night, "raining ash", people panicking, car accidents, horses running down the roads ... but, she got out. It probably got within two miles of their house. That explosion, Tuesday afternoon, did burn hundreds of homes near them. They are just starting to release this information. So far, their neighborhood seems to be "okay."
They met at Paul's sister's house on the east side of town. Mom was/is extremely emotional. The plan as of Wednesday evening was for Mom, Beth (Paul's daughter), and Beth's two kiddos to fly today to Jackson, WY, a trip planned already for next week. The plan, to visit Paul's son Eric & his wife Jess. Paul and Beth's husband Danny, were planning on driving up Friday morning.
However, Mom woke up this morning with terrible pain in her right shoulder, neck & arm. She does have a tumor in her lymph node on that side of her neck and she could not decipher if the pain was related to the tumor or not. So, she cancelled her trip to WY for today and just called me as she was leaving the doc's office. He did a physical exam and believes at this time the pain is muscle, soft tissue, etc. Probably from frantic packing & extreme stress. He does not think that the tumor is the culprit but they will keep an eye on things. She and Paul might decide to go to Jackson sometime this weekend, all depends on how she is feeling.
So, for those of you watching the news. It is very upsetting and emotional to be here. We all know people who have lost their homes and this fire is very far from containment. It is nice to see the amazing outpouring of support from the community to help those that have been displaced as well as the firefighters.
I'll update again tomorrow, unless there is anything to report this evening.
Nysh & Paul are going back and forth from Paul's sister's home to Harvey & Mona's (close friends) townhome, both in the Briargate area on the northeast side of town.
Thank you all for the love & support. There are terrible events happening all over Colorado, and the country. Sending our love as well ..............
Maggie
Nysh had a very scary evacuation Tuesday late afternoon. She was home by herself, Paul was at work. The pre-evacuation order had been given and she was packing. At 4pm a news conference started and by 4:30 it was an emergency, chaotic evacuation. The fire exploded with 65 mph winds pushing it north/northeast, towards Mom & Paul's. She said she stepped out on the patio and saw violent flames erupting & moving very quickly. She grabbed the cat and got in her car. It was dark as night, "raining ash", people panicking, car accidents, horses running down the roads ... but, she got out. It probably got within two miles of their house. That explosion, Tuesday afternoon, did burn hundreds of homes near them. They are just starting to release this information. So far, their neighborhood seems to be "okay."
They met at Paul's sister's house on the east side of town. Mom was/is extremely emotional. The plan as of Wednesday evening was for Mom, Beth (Paul's daughter), and Beth's two kiddos to fly today to Jackson, WY, a trip planned already for next week. The plan, to visit Paul's son Eric & his wife Jess. Paul and Beth's husband Danny, were planning on driving up Friday morning.
However, Mom woke up this morning with terrible pain in her right shoulder, neck & arm. She does have a tumor in her lymph node on that side of her neck and she could not decipher if the pain was related to the tumor or not. So, she cancelled her trip to WY for today and just called me as she was leaving the doc's office. He did a physical exam and believes at this time the pain is muscle, soft tissue, etc. Probably from frantic packing & extreme stress. He does not think that the tumor is the culprit but they will keep an eye on things. She and Paul might decide to go to Jackson sometime this weekend, all depends on how she is feeling.
So, for those of you watching the news. It is very upsetting and emotional to be here. We all know people who have lost their homes and this fire is very far from containment. It is nice to see the amazing outpouring of support from the community to help those that have been displaced as well as the firefighters.
I'll update again tomorrow, unless there is anything to report this evening.
Nysh & Paul are going back and forth from Paul's sister's home to Harvey & Mona's (close friends) townhome, both in the Briargate area on the northeast side of town.
Thank you all for the love & support. There are terrible events happening all over Colorado, and the country. Sending our love as well ..............
Maggie
Thursday, June 21, 2012
I’ll just get right to it. We saw the nurse practitioner in my oncologist’s office yesterday. Unfortunately, after my first round of the new chemo (Lipodox/Doxil) last month, my CA125 (normal is below 35) has increased from 254 to 412. She said it is not uncommon for this type of chemo to increase your tumor marker at first and for it then to start coming down. The other possibility is that it is not going to work at all (like the last one I did). They do want me to have two more doses of this same one (2nd dose yesterday and the next one in a month) before they think about changing it. As I only have one more to try after this one, sounds like a good plan. We are carefully watching the tumors in my lymph nodes in my neck, some of which are now the size of marbles. The other issue is my abdominal incision from December has still not completely closed up. The visiting nurse, Paul or I are still packing it on a daily basis. I may consider a plastic surgeon if this continues.
The good news is that I still feel very well and have continued to have essentially no side effects (other than a little fatigue) from this chemo. We are enjoying the beautiful, although hot weather here in Colorado.
Paul and I continue to try and get our heads and hearts around this situation and remind ourselves everyday how lucky we are. We are doing a volunteer fishing program on Saturday for young hospice patients and their families. We can always find someone less fortunate than we are.
“The way is not in the sky. The way is in the heart.” Buddha
I hold you all close in my heart.
Nyshie
The good news is that I still feel very well and have continued to have essentially no side effects (other than a little fatigue) from this chemo. We are enjoying the beautiful, although hot weather here in Colorado.
Paul and I continue to try and get our heads and hearts around this situation and remind ourselves everyday how lucky we are. We are doing a volunteer fishing program on Saturday for young hospice patients and their families. We can always find someone less fortunate than we are.
“The way is not in the sky. The way is in the heart.” Buddha
I hold you all close in my heart.
Nyshie
Thursday, June 14, 2012
… one day at a time …
It’s been three weeks since my first round with the new chemo and other than a little fatigue, unbelievably, I have had no side effects. My hair is growing back (white and fuzzy at this point), no nausea and no body aches. Paul and I are hoping they didn’t give me a placebo. I’ll have my tumor marker checked in a week and then another round of the chemo. We’re keeping our fingers crossed that this chemo will do more than the last one at managing the tumor growth. If not, I only have one more chemo to try and it doesn’t sound like a fun one. Some days are more difficult than others living with this uncertainty, but hey, I’ve still got an incredible life and so much to be thankful for. Especially, having Peyton Manning as our new Broncos quarterback! :)
We just spent 4 days in Logan, Utah visiting old and dear friends and are now in Minneapolis with other friends and our business partner. Home for a short while, then up to Jackson Hole for the 4th and then to Northern California for Paul’s annual family reunion at Mammoth Lakes. Whew! I’m tired just thinking about it.
As the saying goes, when life gives you lemons …
Big Giant Grandma Nyshie
It’s been three weeks since my first round with the new chemo and other than a little fatigue, unbelievably, I have had no side effects. My hair is growing back (white and fuzzy at this point), no nausea and no body aches. Paul and I are hoping they didn’t give me a placebo. I’ll have my tumor marker checked in a week and then another round of the chemo. We’re keeping our fingers crossed that this chemo will do more than the last one at managing the tumor growth. If not, I only have one more chemo to try and it doesn’t sound like a fun one. Some days are more difficult than others living with this uncertainty, but hey, I’ve still got an incredible life and so much to be thankful for. Especially, having Peyton Manning as our new Broncos quarterback! :)
We just spent 4 days in Logan, Utah visiting old and dear friends and are now in Minneapolis with other friends and our business partner. Home for a short while, then up to Jackson Hole for the 4th and then to Northern California for Paul’s annual family reunion at Mammoth Lakes. Whew! I’m tired just thinking about it.
As the saying goes, when life gives you lemons …
Big Giant Grandma Nyshie
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