Mom had the new chemo regimen yesterday. So far she is feeling fine, but it's early.
Will update in a couple days.
Love,
Maggie
Friday, May 25, 2012
Saturday, May 19, 2012
from Mom ...
The long and the short of it ...
As Paul mentioned in the previous update, we made it to MD Anderson and were a bit overwhelmed by the size of it. We stayed in a hotel owned by the hospital and adjacent to it. They use electric carts (like at the airport) to shuttle patients around. When I had lab work there were at least 40 to 50 people waiting ahead of us. The CT scan was the worst. It took a little over 4 hours from the time we checked in until we walked out, with approximately 60 people in the waiting room.
Most of the staff was very friendly and helpful. We didn’t spend a lot of time with the doctor. Thursday a.m. she reviewed my CT scan, which showed “significant progression of the disease” with most of the tumors (8-10) having doubled in size since December. Labs for the most part were normal. They have one clinical trial for ovarian but for several reasons, I do not meet the criteria, so not an option at this time. She recommended I proceed with the chemo regimen my oncologist here in the Springs wants me to start next week. So, that’s the plan, Sam.
Monday, I have tests to make sure my heart will tolerate this chemo, Tuesday my doc is going to open my incision up once again (which has never healed) and stitch it up. Late Wednesday or Thursday, I’ll have the first round of chemo. The 'good' news about this chemo is that it is given once per month, presumably my hair will grow back (yeah) and the side effects are supposed to be less than the last one I was on.
At least I’m established as a patient at MD Anderson and will continue to use them as a resource. I will be notified of any new clinical trials that come up.
The best news is that our dear friends Gayle and Bruce have 2 tickets to hear Obama’s commencement address at the Air Force Academy on Wednesday and Bruce invited me to go with him! Thanks again so much to the two of you, I’m excited beyond words.
“We cannot change the inevitable. The only thing we can do is play on the one string we have, and that is our attitude ... we are in charge of our attitudes.” Charles Swindoll
Love you all,
Nyshie
As Paul mentioned in the previous update, we made it to MD Anderson and were a bit overwhelmed by the size of it. We stayed in a hotel owned by the hospital and adjacent to it. They use electric carts (like at the airport) to shuttle patients around. When I had lab work there were at least 40 to 50 people waiting ahead of us. The CT scan was the worst. It took a little over 4 hours from the time we checked in until we walked out, with approximately 60 people in the waiting room.
Most of the staff was very friendly and helpful. We didn’t spend a lot of time with the doctor. Thursday a.m. she reviewed my CT scan, which showed “significant progression of the disease” with most of the tumors (8-10) having doubled in size since December. Labs for the most part were normal. They have one clinical trial for ovarian but for several reasons, I do not meet the criteria, so not an option at this time. She recommended I proceed with the chemo regimen my oncologist here in the Springs wants me to start next week. So, that’s the plan, Sam.
Monday, I have tests to make sure my heart will tolerate this chemo, Tuesday my doc is going to open my incision up once again (which has never healed) and stitch it up. Late Wednesday or Thursday, I’ll have the first round of chemo. The 'good' news about this chemo is that it is given once per month, presumably my hair will grow back (yeah) and the side effects are supposed to be less than the last one I was on.
At least I’m established as a patient at MD Anderson and will continue to use them as a resource. I will be notified of any new clinical trials that come up.
The best news is that our dear friends Gayle and Bruce have 2 tickets to hear Obama’s commencement address at the Air Force Academy on Wednesday and Bruce invited me to go with him! Thanks again so much to the two of you, I’m excited beyond words.
“We cannot change the inevitable. The only thing we can do is play on the one string we have, and that is our attitude ... we are in charge of our attitudes.” Charles Swindoll
Love you all,
Nyshie
Tuesday, May 15, 2012
from Paul ....
(Nysh & Paul arrived in Houston yesterday to spend some time at the MD Anderson Cancer Center.)
Saw the Doctor this morning. They are going to look at her tumors to see if there is a clinical trial aimed at her specific tumors. Doing blood work, x-rays, ct scans etc. today and tomorrow. Liked the Doctor, this place is really great as well. Very caring and helpful. Nysh is getting a free Mary Kay makeover right now. I am sure she will come back with lots of products. Dr. said Doxil would be a good drug if there are no clinical trials. Recommended against Avastin because 1-2 percent have significant GI trouble and with her hx she would be in the high risk group for this. We will see her again on Thursday to get results and see what she thinks.
Turning this into a mini vacation. We have tomorrow off so are going sight-seeing and then off Thursday afternoon as well. Home Friday morning. So, having some fun as well.
Love ya all,
P
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