Saturday, August 29, 2009

Weekend update...

Thought you’d all like to see the purple dancing bear! We’re having fun now. But seriously, he’s supposed to be non-weight bearing for 3 weeks, will see the doc and have another x-ray and could continue non-weight bearing for an additional 3 weeks. Depends on how it heals.




Beth and Danny took the dog to help us out for the weekend and have fallen head over heels in love with him. This morning we formally gave them “Jack.” We thought a lot about it and decided it was a better situation for everyone involved, especially the dog.

I see my oncologist on Wednesday to discuss chemo options and Thursday will see the new ob/gyn/oncologist to see if he thinks there’s any value in trying to remove the tumor surgically, or if it's even possible. More details to follow…


“It’s not the years in your life, it’s the life in your years.”

Abraham Lincoln

Wednesday, August 26, 2009

from Nysh...

Paul and I just returned from a 5 day fly fishing trip out of Buffalo, Wyoming. We rode horses out from the base camp for 5 hours over very, rocky terrain and stayed in our “tent” camp for 3 days. We had wonderful fishing, mostly little brookies, incredible food and ended up bringing home a new dog. One of the wranglers had a 7 month old border collie, named Jackson, whom he had to find a new home for. Paul fell in love with him, what could I say? I think he’ll be his new fishing buddy for the next 6 months.

I had my needle biopsy Monday morning and just got the pathology results from the oncologist. It is the ovarian cancer returning and I’ll start chemo at the end of next week or the beginning of the following week. I’ll update as soon as I know for sure, meeting with the oncologist next week to discuss chemo options.

Today I'm heading to a 4 day retreat for women who have cancer. It’s held at the Shambhala Mountain Center North of Ft. Collins at Red Feather Lakes. It includes meditation, yoga, group sessions, etc. I’m really looking forward to it as a possible means to get emotionally prepared for starting the chemo again. What else can I say? This is the hand I’ve been dealt, my only choice is to play it with as much courage and grace as I can.

I love you all.
Nyshie









Thursday, August 13, 2009

Update...

The long awaited appointment with my oncologist was this morning. I was very fortunate to have Paul, Maggie and Ben with me. Overall, we feel it was pretty good news, or at least better than we were imagining. My CA125 remains at 30. The PET scan did show a 2 cm tumor in an abdominal lymph node, which is larger than a previous scan. He’s 95% certain that it’s a return of the ovarian cancer, but will need to do a needle biopsy to be absolutely certain. I’ll have this done by a radiologist within the next week or so. If it’s confirmed as ovarian, then I’ll begin on the same chemo routine as before, every three weeks for six sessions and yes, I’ll lose my hair again, damnit!

The bad news is that this particular tumor has situated itself nicely between my abdominal aorta and my kidney, which makes it virtually inoperable. Way too risky to be wielding a scalpel on and around my aorta. The good news is that the cancer responded very well to the chemo before so no reason to think otherwise this time.

Long term, I’ll just continue to have it scanned probably twice a year and most likely, will need to have chemo on again off again indefinitely. Who knows, perhaps my hair will come back straight next time?

Another great Bernie Siegel quote:

“Even if what you most hope for-a complete cure-doesn’t come to pass, the hope itself can sustain you to accomplish many things in the meantime. Refusal to hope is nothing more than a decision to die.”

My heart is continually refilled with hope from all of the love and support from each and every one of you.

Love you all,
Big Giant Nysh

Friday, August 7, 2009

Brief update...

Hi,

Nysh asked me to send out a quick update. She had the catscan and the petscan (sp?) today. She will repeat the CA125 on Wednesday and meet with her oncologist on Thursday of next week. She or I will post an update after that appointment when we have more information and a better idea of what is next.

Thanks and love,
Maggie