from Nysh...

Thought I would let everyone know that I’m recuperating well after my last go around with chemo. I still occasionally have the same epigastric pain that sent me to the hospital last time, but not nearly as severe. It just doesn’t seem to correlate with how my lower intestines are functioning, so I think it’s my old reflux.

Anyway, life is good. Have been taking some great walks and hanging out with Vivian and the kids. I’m going to my physical therapy class this afternoon. I wasn’t able to go to the first two classes because of the chemo. I still haven’t put on any weight, but I’m sure that will change after I finish chemo. Not sure how long it takes for the hair to grow back?

Four down and two more to go!!!

Love you all,

Nyshie

Hi all

Nysh went home last night after the transfusion. She's doing okay, chemo. side effects still kicking but she's eating, thank you marinol, and going for walks!

That's all for now.
Thanks for the love!
M.

Tuesday

Hello,

She is feeling better today. Her red blood count/hemoglobin is low though, so she is currently having another transfusion. The plan is for her to head home this evening if everything stays on track.

Love,
M.

Info.

The doc said that she had a partial intestinal blockage in her small intestine. Because they removed so much of her large intestine, and chemo. halts her digestive processes, things were not working and that is what was causing the horrific pain. She is going to stay in the hospital again tonight but everything is looking okay.

Thanks,
M.

Monday

Hi,

Well, I don't really have any news so far. She had a chest x-ray last night and an ultrasound this morning and I'm still waiting to hear from Paul if the doc has come by to reveal any results. She feels fairly crummy but her pain is a bit better.

I'll post as soon as I hear from Paul.

Love,
M.

evening update...

I just got home from the hospital. Saw the doc, he said this is all a result of her having a bad reaction to the particular chemo. drugs. Insert sarcastic "DUH" here! She is on heavy pain meds, feeling okay, humor is still intact. They're doing an ultrasound tonight to rule out anything else. The plan is to wean her off the IV pain meds tomorrow, as her pain tolerance allows and then she can head home.

The on-call doc said that she will probably need to adjust/change her chemo. protocol for rounds 5 and 6 b/c her reaction has been so horrible. I don't really know what all that means.

I'll post tomorrow.
M.

ER again...

Paul is taking Nysh to the hospital as I type. She had round 4 on Wednesday, things had been okay. She had fatigue and bone pain, fairly normal stuff. Then in the middle of the night the really painful gastric pain started again. This morning was horrific and she just fainted and vomited. So, they're on their way to the ER at Memorial. I'll post as soon as I know anything.

Thanks,
Maggie

from Nysh...

Just a quick note before I have my 4th chemo treatment tomorrow.

A few weeks ago I had genetic testing done to determine if I carry a gene for ovarian cancer or if it is just random that I got it. If it had been positive Maggie, my sister and my nieces would have needed to have similar testing done with a consideration of having their ovaries removed prophylactically. I just spoke with the geneticist and it was negative, which means the Fly girls are just fine and can rest easy at least from my gene pool standpoint.

Yesterday was my 57th birthday (yes, I know, hard to believe) and I have to say it was one of the most incredible birthdays I’ve ever had in my life.

It started with a wonderful lunch on Saturday with very special friends, followed by a gourmet meal at Beth and Danny’s on Sunday evening with Maggie, Chad, Vivian, Ben and Paul. Yesterday was a perfect, sunny Colorado day. Maggie treated me to a morning pedicure (which included a glass of wine) and a delightful lunch at the Broadmoor Hotel. In the afternoon Ben treated me to an amazing golf lesson and hitting a bucket of balls at our favorite course. I had loving calls and emails all day from friends and family. Sweet Paul treated me to some of my favorite foods for dinner: artichokes and lobster. From our patio, we watched the sunset over Pikes Peak and I felt like the luckiest woman in the world. What more could I ask for?

I love you all,

Nyshie

General update

Hi all,

Nysh has been home since Thursday night, resting and recovering. She has mostly felt fatigue but was able to get out of the house today.

Nysh and Ben are planning a garden and she's had two visits with Miss Vivian, so, she's getting there.

Thanks for everything ya'll!

Love,
Maggie

Thursday update

Good news, her ultrasound is normal. They are assuming that the bleeding is in the bowel dept., but they don't want to put her through anything else (colonoscopy) since she's still recovering from chemo. The bleeding appears to be insignificant and they're attributing the blood loss, her hematocrit is 24 today, as a result of the chemo. So, she's going to get a transfusion, two bags, and then go home this evening!!!

She's in good spirits, no more diagnostics or surgery, and totally ready to go home!

Love,
M.

More tests...

Well, the catscan came back normal yesterday and the endoscopy came back normal today. So, they're still trying to determine the site of the bleeding. She is going to have an ultrasound this afternoon to rule out her gallbladder. If the ultrasound is normal they will do a colonoscopy, probably tomorrow, to check for bowel perforations.

She is at Penrose Main, rm. 1123.

Love,
M.

Ugh-3, some good news

The catscan looked great and there are no tumors!

However, she is definitely bleeding from somewhere and it is most likely gastric. They will do an endoscopy in the morning and hopefully get that figured out. She sounds really good, she's comfortable and not in any pain.

I'll post again tomorrow.
M.

Ugh-2

I have a little more information. Nysh's hematocrit is low, 30 instead of 38. She is going to be admitted to Penrose Main and she is currently doing the prep. for the catscan which she will have today. The scope won't be performed until tomorrow.

That's all for now.
Love,
M.

Ugh!

Nysh is at the hospital. She's had really bad gastric/reflux pain for the last two days. They found blood in her stool, an indicator for a gastric bleed. They'll do a catscan and a scope next. I'll post again later when I have more information but it appears that it is somewhat mild.

M.