Good news to report. I saw the urologist in Denver on Tuesday and he removed the stint from my ureter. I’ll skip the details but it wasn’t nearly as bad as I had anticipated and my plumbing seems to be slowly returning to normal.
I had my third round of chemo on Wednesday and the Neulasta shot Friday morning so I’m anticipating a quiet next 4-5 days hopefully with less side effects than I experienced last time. That’s three down and three to go. If I stay on schedule, my last chemo will be May 28th and hopefully we’ll be able to celebrate. I’ll keep you posted. Thanks again for all of the continued love and support.
Nyshie
PS Nysh had a recent CA-125 test and it was 18!! Fabulous and normal.
Sunday, March 30, 2008
Monday, March 24, 2008
The Goddesses!
Standing-Jodi, Ginny, Mary Lou & Ellen
Sitting-Nyshie (in photo), Gayle & Susan (in photo)
Sitting-Nyshie (in photo), Gayle & Susan (in photo)
Sunday, March 23, 2008
Update from Nysh
Well, it’s officially springtime in the Rockies: chilly with snow on the ground this morning and it will be 65 and sunny tomorrow. Before I have my next round of chemo. on Wednesday I thought I would give you a brief update.
I have gradually been approaching what I would say is a return to feeling normal the further I get away from my last chemo. I’m still weak and need to rest frequently during the day but I have been trying to walk a mile or so down our road when the weather permits and riding the stationary bicycle when it’s cold. Also, I have really enjoyed some social outings having lunch and dinner with family and/or friends and finally have even worn my wig a few times. Paul and Ben are getting used to the Yule Brenner look around the house. Our local paper has a feature story today about a rehabilitation, exercise program at a local hospital that is specifically designed to help individuals who are going through chemo. I’m planning on starting that this week if possible.
Someone sent me a great quote, perhaps Maggie, that I think is worth sharing:
“Life is not the way it’s supposed to be.
It’s the way it is.
The way you cope with it is what makes the difference.”
I am trying everyday to get my arms around this situation and cope with it in a way that is healthy and helpful, not just for me, but for Paul, the kids and everyone involved. I am trying not to think about my prognosis or outcome, but instead think of today and how blessed I am to have so much love and support in my life. Some days are more difficult than others, but I try to remember, I only have today for sure so I should make the best out of it. I love you all.
Nyshie
I have gradually been approaching what I would say is a return to feeling normal the further I get away from my last chemo. I’m still weak and need to rest frequently during the day but I have been trying to walk a mile or so down our road when the weather permits and riding the stationary bicycle when it’s cold. Also, I have really enjoyed some social outings having lunch and dinner with family and/or friends and finally have even worn my wig a few times. Paul and Ben are getting used to the Yule Brenner look around the house. Our local paper has a feature story today about a rehabilitation, exercise program at a local hospital that is specifically designed to help individuals who are going through chemo. I’m planning on starting that this week if possible.
Someone sent me a great quote, perhaps Maggie, that I think is worth sharing:
“Life is not the way it’s supposed to be.
It’s the way it is.
The way you cope with it is what makes the difference.”
I am trying everyday to get my arms around this situation and cope with it in a way that is healthy and helpful, not just for me, but for Paul, the kids and everyone involved. I am trying not to think about my prognosis or outcome, but instead think of today and how blessed I am to have so much love and support in my life. Some days are more difficult than others, but I try to remember, I only have today for sure so I should make the best out of it. I love you all.
Nyshie
Thursday, March 20, 2008
Sunday, March 16, 2008
Friday, March 14, 2008
Wednesday, March 12, 2008
Update
Hi all,
She is climbing back up! She's still relying on the anti-nausea and pain meds. but she's been able to get out of bed and do some things. Spirits are picking up!!!!
In regards to all of the wonderful meals that have been brought over, thank you! Their freezer and fridge are full. Nysh is eating such small portions and Paul and Ben can only do so much damage. A break in meal delivery would be great so that they can catch up and again, thank you so much for all of the love via cooking!
Maggie
She is climbing back up! She's still relying on the anti-nausea and pain meds. but she's been able to get out of bed and do some things. Spirits are picking up!!!!
In regards to all of the wonderful meals that have been brought over, thank you! Their freezer and fridge are full. Nysh is eating such small portions and Paul and Ben can only do so much damage. A break in meal delivery would be great so that they can catch up and again, thank you so much for all of the love via cooking!
Maggie
Sunday, March 9, 2008
Update
Hi,
The last two days have been fairly crummy for Nysh. The combination of side effects from the chemo. and from the neulasta shot (to increase wbc production) have kept her in the bed. She's had lots of body/bone pain and a severe headache. Spirits go up and down but she's hanging in.
Love,
Maggie
The last two days have been fairly crummy for Nysh. The combination of side effects from the chemo. and from the neulasta shot (to increase wbc production) have kept her in the bed. She's had lots of body/bone pain and a severe headache. Spirits go up and down but she's hanging in.
Love,
Maggie
Friday, March 7, 2008
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Thursday, March 6, 2008
From Nysh;
Hooray!!! At least, so far so good. I had my second course of chemo yesterday afternoon with no appreciable side effects yet! Both of the drugs, Taxol and Carboplaten were infused through my IV port over a 4 hour period. No more of that nasty intra-abdominal for me. I added a very potent anti-nausea drug for two days and I'm sticking with the marinol, so something is working. I go in tomorrow for a Neulasta shot, which is supposed to increase my bone marrow production of white blood cells (which the chemo destroys). Not sure what the plan is for decreased red blood cell count. Last time I had transfusions. Anyway, my next scheduled chemo is in 21 days, assuming that my blood counts are high enough then.
The only other issue is in late January, my CA 125 was 64 (normal is below 35) and at the end of February, it was 69. The doc said lots of things can make it vary a “little” like this, such as the chemo, the peritonitis, but we will keep a close watch on it.
Otherwise, I’m still trying to stop losing weight, eating much better and more often. Riding the stationary bike every day, walking down the road when the weather allows. Just trying to get beyond this weakness and enjoy every day that I have. Thanks for the continued love and support!!!
Nyshie
The only other issue is in late January, my CA 125 was 64 (normal is below 35) and at the end of February, it was 69. The doc said lots of things can make it vary a “little” like this, such as the chemo, the peritonitis, but we will keep a close watch on it.
Otherwise, I’m still trying to stop losing weight, eating much better and more often. Riding the stationary bike every day, walking down the road when the weather allows. Just trying to get beyond this weakness and enjoy every day that I have. Thanks for the continued love and support!!!
Nyshie
Round 2
Hi,
Nysh had round 2 of chemo. yesterday. She had IV taxol and carboplatin over four+ hours at the cancer center, no hospitals this time. So far she is feeling okay. A little fatigue and she is staying on top of the nausea with the meds. I'll post an update from her soon!
This picture is from last night, she stopped by to see Vivian after chemo.
Love,
Maggie
Nysh had round 2 of chemo. yesterday. She had IV taxol and carboplatin over four+ hours at the cancer center, no hospitals this time. So far she is feeling okay. A little fatigue and she is staying on top of the nausea with the meds. I'll post an update from her soon!
This picture is from last night, she stopped by to see Vivian after chemo.
Love,
Maggie
Sunday, March 2, 2008
The Latest From BGN...
Hello,
I went to see the oncologist this past Friday. It was supposed to be a “chemo” day, but he took one look at me and felt I was just too “puny” to do the chemo. He firmly told me to take the Marinol (pot) pills every day, start eating, get stronger and we would start the chemo next Wednesday, no matter what.
I followed his advice, have been eating much more, walking when the weather permits, 20 minutes on the stationary bicycle (with Paul standing over me with a whip) and all in all, I feel 100% better. I’m ready to face this chemo monster, which I’ve been dreading after the first go around. My mother said if I become a pot-head, it’s ok, as long as I eat!
By the way, have I mentioned how incredible our kids have been through this? Ben has done extensive research into diet and alternative treatments and hovers over me like a mother hen. Maggie has been there every minute of every day in spirit if not in body and of course, manages the blogsite. Beth and Eric call and check in constantly. Eric even flew down from Jackson for a quick weekend trip. Matt checks in frequently, when school, work and girlfriend allow. And without my sweet Paul, I never would have made it through the last two months.
Will keep you posted on how this round of chemo goes, should be much easier than the last. Love you all.
Nyshie
I went to see the oncologist this past Friday. It was supposed to be a “chemo” day, but he took one look at me and felt I was just too “puny” to do the chemo. He firmly told me to take the Marinol (pot) pills every day, start eating, get stronger and we would start the chemo next Wednesday, no matter what.
I followed his advice, have been eating much more, walking when the weather permits, 20 minutes on the stationary bicycle (with Paul standing over me with a whip) and all in all, I feel 100% better. I’m ready to face this chemo monster, which I’ve been dreading after the first go around. My mother said if I become a pot-head, it’s ok, as long as I eat!
By the way, have I mentioned how incredible our kids have been through this? Ben has done extensive research into diet and alternative treatments and hovers over me like a mother hen. Maggie has been there every minute of every day in spirit if not in body and of course, manages the blogsite. Beth and Eric call and check in constantly. Eric even flew down from Jackson for a quick weekend trip. Matt checks in frequently, when school, work and girlfriend allow. And without my sweet Paul, I never would have made it through the last two months.
Will keep you posted on how this round of chemo goes, should be much easier than the last. Love you all.
Nyshie
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